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Experiences of people with lived experiences in gambling harm reduction efforts

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Author(s): Jenkins, Catherine L. ; Mills, Thomas ; Grimes, James ; Bland, Colin ; Reavey, Paula ; Wills, Jane ; Sykes, Susie

Journal: BMC Public Health

Year Published: 2024

Date Added: April 23, 2024

Lived experience (LE) involvement has emerged in many sectors. This study explored the involvement of LE in a UK regional intervention for addressing gambling-related harms (Greater Manchester Communities Addressing Gambling Harm). The researchers conducted focus groups and interviews with people with LE who were involved in the intervention, as well as project staff and senior stakeholders without LE. The researchers identified four main themes: (1) personal journeys to LE involvement; (2) the value added by LE to interventions for addressing gambling-related harms; (3) emotional impacts on people with LE; and (4) collective LE and diverse lived experiences.

More information about Greater Manchester Communities Addressing Gambling Harm, including briefing reports, presentations, and a video, can be found on the National Institutes of Health Research website.


Citation: Jenkins, C. L., Mills, T., Grimes, J., Bland, C., Reavey, P., Wills, J., & Skyes, S. (2024). Involving lived experience in regional efforts to address gambling-related harms: Going beyond ‘window dressing’ and ‘tick box exercises’. BMC Public Health, 24, 384. https://doi.org/10.1186/s12889-024-17939-7

Article DOI: https://doi.org/10.1186/s12889-024-17939-7

Keywords: community impacts ; evaluation ; gambling-related harm ; harm reduction ; lived experience

Topics: Gambling Resources ; Information for Operators ; Information for Treatment Providers ; Prevention ; Venue and Community

Conceptual Framework Factors:   Environment - Social and Economic Impacts ; Resources - Harm Reduction, Prevention, and Protection ; Gambling Resources

Study Design: Qualitative: Content Analysis

Geographic Coverage: United Kingdom

Study Population: People with lived experience (LE) who were involved in the Communities Addressing Gambling Harms (CAGH) intervention (n = 14), project staff without LE (n = 14), and senior stakeholders without LE (n = 4)

Sampling Procedure: Participants were recruited because they were involved in the CAGH intervention, a city-region gambling harm reduction intervention that presented multiple opportunities for LE input. The CAGH intervention was delivered through 12 community projects and LE advisory panel (LEAP).

Related Resources:
  • ‘Communities Addressing Gambling Harms’: An intervention for social innovation in an emerging public health field
  • Innovative safer gambling campaigns to challenge harmful gambling products and industry practices: A description of ‘Odds Are: They Win’
  • 'Odds Are: They Win' Campaign evaluation

Study Funding:

This study was funded by the National Institutes of Health Research (NIHR) programme.

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  • About Us
    • What We Do
    • Team
    • Our Philosophy
    • Board of Directors
    • Join Us
  • Services
    • Funding Opportunities
    • Applied Research
    • Knowledge Products 
    • Knowledge Management
    • Stakeholder Engagement
    • Impact Evaluation
    • Project Consulting
  • Resources
    • Conceptual Framework of Harmful Gambling
    • Data Repository
    • Evidence Centre
    • Gambling from a Public Health Perspective
    • Prevention and Education Review: Gambling-Related Harm
    • Research to Inform Action Evidence Hub
    • Safer Gambling Evaluation Evidence Hub
    • Resources for Safer Gambling During COVID-19
  • Partners
    • Network to Reduce Gambling Harms
    • Academic Forum for the Study of Gambling (AFSG)
    • National Strategy to Reduce Gambling Harms in Great Britain
  • Contact
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    • Helplines